House of Assembly
Newfoundland and Labrador

Petition  
Presented April 30, 2009
Dialysis Unit for Western Newfoundland

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MR. SPEAKER: The hon. the Opposition House Leader.

MR. KELVIN PARSONS: Thank you, Mr. Speaker.

I would like to take this opportunity to present a petition on behalf of the residents of Southwestern Newfoundland, particularly the area from South Branch to Rose Blanche, but also down of course to LaPoile and Grand Bruit as well, and that is in regard to the dialysis, or lack of dialysis in that particular area.

As we have indicated, we cover off in that area about 12,000 to 15,000 people who live in the region. All of them who need dialysis services have to go to Corner Brook to get the service. Now that usually involves about three times a week. I believe there is some in Stephenville as well, I say to the hon. Government House Leader. I believe there is in Stephenville as well. Mr. Speaker, that involves at least 400 to 500 round trip kilometres for anybody who has to make that service. By the way, it is not through your usual, regular travel. It, of course, has to take you through the well-known famous Wreckhouse area.

Now we have been after the minister for ten years trying to get him to pay some attention to that particular area. The minister did in fact meet with the town council and representatives of that concern last year in Corner Brook. He told them they would get a letter from him, still waiting for the letter by the way. I talked to the minister about this some months ago. He indicated to me that he would be following up on it. I was asked as recently as yesterday, again by people who are involved with this issue, saying when are we going to get something back from the minister? We have not had a response even since last fall, six months ago.

The people in that area, as I indicated, they are prepared to raise the funds to buy the equipment. That is not an issue. There are staff in the area who are prepared to train to operate the equipment, staff who are long-term lifetime working nursing people in that particular area. They cannot understand why the government would not permit the dialysis to be done at the Charles L. LeGrow Centre in Port aux Basques if the people in that region who need it and the community are prepared to support it, are prepared to raise the funds to put the equipment there, are prepared to train the staff to operate the equipment.

We have nine or ten people at any given time who use these machines, and to do so every week of their life, it is just an onerous, onerous situation to place these people in. Not only the patients themselves, of course, but many of these people have to have people who would accompany them. So you are causing stress not only for the patients themselves but also for the parents who are involved, the children of these people who are involved. In fact, we had a situation, many situations where over the years, in ten years many people have had to leave town to move to other places simply because they could not physically, emotionally handle it any more. Not to say anything about financially, because obviously, albeit there might be some aids and supports from government to these people, it never offsets totally the cost of having to do this.

Now anybody who has had a family member affected by this type of disease, of course, knows just how dreaded it is. We look with some hope - in fact, when I heard the minister last week talking about the possibility of using home dialysis that was very positive. That was the first time that the minister indicated and the spokesperson for the association said we might be able to use that more often for more people. I thought that was very positive, felt very encouraged by that, but when we go back and check it out with the people who are currently using it, apparently these people cannot avail of that home service. There becomes a point when you cannot use the home dialysis treatment facility and equipment. Albeit, anyone who could, of course, would love to do it at home. It gets rid of the travel, it gets rid of the cost associated with the travel, and you can live a much more normal life in that situation. The home dialysis is not possible for these people at the present time. They have been waiting ten years for the minister to give some kind of answer. He has not even given an answer that is defensible, or Western Health has not given an answer that is defensible.

I realize, Mr. Speaker, my time has come to an end on this particular petition, so thank you very much.

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