|
Private
Member's Motion
Wednesday, May 27, 2009
Home
| In the House | Private
Member Motions
MR. SPEAKER: This
being Private Members’ Day, and it now being 3:00
o’clock, I now call on the hon. the Member for the
District of Cartwright-L’Anse au Clair and the Leader
of the Opposition to debate her private member’s
resolution.
The hon. the Member for
the District of Cartwright-L’Anse au Clair.
MS JONES: Thank
you, Mr. Speaker.
I am certainly pleased
today to rise on behalf of children in our Province who
suffer from autism and are going without the appropriate
services that they should be getting beyond the age of
six.
Mr. Speaker, for the
record, I would like to read my private member’s
motion into the records of the House.
WHEREAS
Autism Spectrum Disorders (ASDs) are lifelong
neurological disorders that affect a person’s
development and how the brain processes information; and
WHEREAS
ASD is the most common neurological disorder affecting
children; and
WHEREAS
Newfoundland and Labrador had a prevalence rate of 1 in
132 in 2008 and the rate is expected to be even higher
for 2009; and
WHEREAS
the number of people receiving a diagnosis of autism is
on the increase in Newfoundland and Labrador; and
WHEREAS
evidence-based research shows that the lifelong cost of
assisting a person with autism can be reduced if the
child receives early diagnosis, effective treatment and
adequate supports; and
WHEREAS
all direct government programs for children with autism
end after age six; and
WHEREAS
schools do not have adequate resources and there is a
demonstrated need for programs;
BE
IT RESOLVED that government extend autism
services offered for children below six years of age to
all children.
Mr. Speaker, we feel very
strongly about this resolution, only because we have had
the opportunity to meet with parents and grandparents
and to discuss the challenges that children are
experiencing in our school system, children who suffer
from autism.
A year ago we raised this
issue in the House of Assembly, and we left the issue
with a commitment that was untaken by the Minister of
Health that he and the Minister of Education would have
dialogue to look at what further services could be
provided for children who suffer from autism who are in
our school system. Well, a year later, we certainly did
not get any feedback in terms of what were additional
supports or satisfactory supports that would be launched
to be able to meet the needs of these children.
Mr. Speaker, first of
all, I think people should realize and understand that
there is no effective means to prevent autism, and there
is no full effective treatment or cure, and I think
anyone who is familiar with this disease will understand
this. Therefore, it becomes a disease that requires
lifelong support and lifelong treatment. It does not
start at the time of diagnosis and end at the age of
six. In fact, it is a service that needs to be
continued. The gap in our service today in this Province
exists for children between the ages of six and
eighteen, and this is where we hope that government will
want to focus more energy, more supports and more
resources.
Even since I tabled this
resolution in the House of Assembly, I received a number
of e-mails from people in the Province, and have been
listening to what they have had to say, or reading what
they have had to say, but it is amazing how many people
out there, how many families out there, in this Province
who have children who suffer from autism feel like they
have nowhere to turn most days in terms of gathering
more supports and more services.
Mr. Speaker, there are a
couple of things I want to point out. First of all, that
it takes seventeen months in this Province to have a
child with autism diagnosed; it takes seventeen months.
Even after diagnosis is done, oftentimes it takes longer
before treatment is engaged.
Mr. Speaker, we are all
aware of the case of Gloria Sparkes, a grandmother in
this Province of two autistic children, who took her
case to the Supreme Court because she felt that her
grandchildren were not getting the services of early
intervention that they should be getting, and she won
her case. She won her case which stated that once
children were diagnosed they had to receive the services
of early intervention within thirty days.
Today, Mr. Speaker, in
this Province those timelines are being met, but the
delay now is getting the diagnosis. Because of the
actions of one woman and her challenges in the courts,
children today that suffer from autism will get the
intervention within an appropriate period of time, but
today they are not getting the diagnosis. They are
waiting up to seventeen months to be diagnosed. What I
have been told and the literature that I have read,
tells us that early intervention of children with autism
needs to occur as early as possible, within the first
two years of a child’s life. Because of the backlog we
have in this Province of having children diagnosed, and
the fact that there is only one development psychologist
to serve the whole Province, our children are losing
most of the first two years of their lives. That is one
issue.
The other issue, Mr.
Speaker, is the issue of what happens when a child
becomes six years of age. We have a system today in the
Province of early intervention, whether that happens
when a child is two or three, whereby a child is led
through our entire system. They are given the applied
behaviour analysis and they are supported by that
program to age six. They are given the services of
communications, speech and language pathologists, they
are given occupational therapy. Mr. Speaker, all of
their services are provided for them. They are taken by
the hand and they are led through all of the resources
that a province can provide for these children.
What
happens at age six? At age six, when these children have
to go into our school system, those supports do not
exist in the same manner and parents have to look for
the resources themselves and finance those resources.
The reality is we know that does not happen for every
single child. Some parents have the opportunity to home
school their children with a new set of challenges and
problems - as I am learning - that exist around that,
but not all children have that opportunity. Many of them
have the opportunity to be able to hire Autism
Partnership, which is a private firm that the Province
engages to support these children to the age of six, but
not all families have the financial ability to do that.
So, Mr.
Speaker, many of our children once they reach the age of
six that suffer from autism, do not have the supports
they require within the system. I know that the Minister
of Education today is going to stand in his place and he
is going to quote to me information that says that the
program may not work for all children. He will tell me
that ABA may not work for every student that suffers
from autism in the school system. He may have some
points, but, Mr. Speaker, Dr. Ronald Leaf who has been
the Autism Partnership firm that this government has
hired and seconded for years to provide these services
to children in our Province, in his book clearly
indicates that ABA is practiced in all types of settings
with all types of populations and age groups and have
been used to improve many behaviours, including social
skills, job performance, language, and language
acquisition.
This is
the same firm that the provincial government engages and
pays for services for children in the Province up to age
six, who is saying that there is room for this in our
school system; that children have the ability to learn
and foster from this program if it was available to
them. In fact, Mr. Speaker, the program is used in
schools all over North America. All over North America,
and there are a number of journals and books that are
written as testimony to the success of that program for
children.
Now, Mr. Speaker, the
minister will also stand today and tell me that they
have a provincial pilot starting in September in our
school system, to talk about the inclusion model that
will be looked at in fifteen schools across the
Province. Mr. Speaker, we have no problem with this
model. We have no problem with incorporating it into the
schools and doing the pilot. What we do have a problem
with is ensuring that children who suffer from autism
will get the services that they need as part of that
program, because today many of those do not exist in the
school system. We want to know if children of autism
will have individual learning as part of that program.
We want to know if they are going to have dedicated
services, such as occupational therapy. We want to know
if they are going to have student assistant teachers,
not just assistance in the classroom, but student
teacher assistants, like is being used in Nova Scotia
and in New Brunswick and in Prince Edward Island, where
people are trained to actually be teacher assistants in
the classroom to students like this, who suffer like
this, Mr. Speaker.
We know that no such
designation even exists in the Province today. The
designation does not exist in Newfoundland and Labrador.
The training does not exist in Newfoundland and
Labrador, yet it is the support that is being used in
other schools in Atlantic Canada to help these children.
We want to know if ABA
– why not look at piloting ABA in the classrooms? Why
not piloting it in the schools? It can be incorporated
in the school system as has been written by experts,
experts that your own department have hired to do work
in this Province and they are telling you in those books
that they have authored, that it can be incorporated
into the educational program.
So, Mr. Speaker, there
has been a realization over the years that children that
have a unique way of learning, that have unique
disabilities, have been accommodated in our school
system. We have seen it with children that are deaf,
where there are proper supports and technology provided
to them, where they have been able to communicate using
sign language. We have seen it with our children that
are blind, that have been given proper technology and
supports in the classroom and have been given the
opportunity to communicate in Braille. We have seen it
with children who have learning disabilities, where
there has been supports developed for them in the school
system.
Today we are asking that
government recognize that autism, too, is a unique
disability, learning disability that these children face
and that they, too, need to have the proper supports. We
know without these supports, most children of autism
suffer from behavioural problems and because of that,
our school system have practically expelled these
students.
I have dozens and dozens
of cases documented here, dozens of cases of where
children who suffer from autism are being expelled in
our Province’s schools in this Province. Because, Mr.
Speaker, the teachers in the classroom do not have the
supports to be able to deal with the behavioural issues
that develop when these children are not taught to
communicate properly and effectively.
Mr. Speaker, is it right
for these children to be sent home from school on a
daily basis because the resources are not in the school
to deal with their problems? They need more supports,
and this government has the ability to do that. You
recognize that before the age of six the resource is
needed, you recognize that once they turn the age of
eighteen that they can go back and get those supports,
so why can’t they get them through their school years?
Mr. Speaker, every child
must have the means to communicate in order to learn.
That is a requirement in our school system, and I think
we need to understand that. A child with autism - I have
had cases quoted to me where they have been in a
classroom with a broken hip, and sent home because they
did not know what was wrong with the child; a child who
has been suffering from appendicitis and could not
communicate what was wrong with them, and they were just
sent home, not being able and not knowing how to deal
with their problems. This happens every day and it is
unacceptable for children in our system.
In order for parents to
continue to support these children they have to pay for
it themselves, with an average cost – I have one
e-mail here that was sent to me yesterday by a gentleman
who said this year it will cost $12,000 for him to have
supports for his child.
MR. SPEAKER (T. Osborne):
Order, please!
I remind the hon. member
that her time for speaking has expired.
MS JONES: Thank
you, Mr. Speaker.
I will certainly conclude
my comments.
MR. SPEAKER: Does
the hon. member have leave?
AN HON. MEMBER: By
leave.
MR. SPEAKER: The
hon. member, by leave.
MS JONES: Thank
you, Mr. Speaker.
I will certainly conclude
my comments. There are so many things that I could
address as part of this, especially within the school
system, in dealing with the recommendations that came
out of the Pathways report and the ISSP/Pathways report
to deal with teachers, to deal with student assistants,
to deal with guidance counsellors and psychologists. I
do not have time to get into all of that today but there
were good recommendations, and they need to be followed.
Also, Mr. Speaker, I have
had the opportunity to have the advice of Dr. Philpott,
who I know has incorporated one course right now into
the Faculty of Education at MUN that deals with this
subject area, but the other course is optional. I do not
think it is good enough. I think that more needs to be
done if we are going to ask teachers in a classroom to
deal with disorders of this nature and to deal with
children of this nature. Not only do the children need
to have proper supports, but so do those teachers in the
classroom.
MR. SPEAKER: The
hon. the Minister of Education.
SOME HON. MEMBERS: Hear,
hear!
MR. KING: Thank
you, Mr. Speaker, and I certainly thank the member
opposite for bringing the motion forward, and for
providing me and some others with the opportunity to
have a chance to have a few words.
I want to say up front
that I certainly do recognize the importance of the
motion, and the importance, perhaps, not so much of the
motion as the topic that we are discussing here today:
the whole issue of autism and autistic children, and
autistic families, if I might use that term perhaps a
little looser.
My professional
background, for the benefit of the House, was in the
education system. I spent just about twenty years as a
classroom teacher, a school principal, a district
administrator, and I recognize many of the things that
the member opposite has talked about. I have experienced
those.
I am not going to stand
here and - as a matter of fact, I am not going to stand
here and debate many of the things that she suspects I
will debate, because I do not think it is the place for
it and I do not think it is the kind of debate that I
want to engage in.
I also recognize from a
very personal level the challenges that we have for
autistic children. My own family is affected by that,
and I have gone through the struggles on a personal
basis for many, many years, and witnessed many of the
trials and tribulations that families go through: broken
homes, where husbands and wives and siblings have issues
between each other in trying to reconcile what the right
approach is to dealing with a child who has autism, or
Autism Spectrum Disorder is perhaps the more appropriate
term. We often loosely refer to it as autism, but I
think Autism Spectrum Disorder is probably the clinical
term.
I have seen first-hand,
Mr. Speaker, the kinds of things that occur at home in
families. For the benefit, I am sure, of those who may
be watching this at home, or perhaps in the audience
even - I am not sure - if any of these people who are
here are associated with this, I am sure they can all
account to some of the things that I am saying here
right now.
I am not going to engage
in the debate, Mr. Speaker, along the lines that perhaps
the Leader of the Opposition was anticipating that I
would. I do want to say up front that I do recognize the
challenges at home, and I recognize the challenges in
school, and I will say that we recognize, as a
government, as I am sure the Opposition does, that
things are not perfect.
I will share a quick
story. When I taught junior high school, many years ago
now, I taught an individual who was diagnosed with
attention deficit disorder - a little different than the
debate we are talking about, but the story is relevant
– and the individual was very challenged. It was very
challenging for the teachers and for me, personally,
very challenging for the parents, and very challenging
to establish relationships that made the classroom
conducive to learning and that made the classroom a
place where the student was able to learn and I was able
to teach, and many of my colleagues who taught that
particular child.
I share that, Mr.
Speaker, because many years have passed and it was only
yesterday that the mom and that particular student
presented themselves in my office to say hello and to
share a bright spot in their life: that this morning the
son was graduating from Memorial with a Bachelor of Arts
degree.
SOME HON. MEMBERS: Hear,
hear!
MR. KING: That
is a good story, Mr. Speaker, but the point of my story
was not what I just said. The point of my story was that
the mom shared with me that all through the K to 12 high
schooling, this son – it was a male – had autism and
it was never diagnosed until he got into university. So,
all through the K to 12 schooling, we in the education
system, and the medical professionals and the doctors
who dealt with it, were treating him with drugs that
applied to attention deficit disorder when, in fact, it
was not the problem at all.
I share that, Mr.
Speaker, to drive home the point that I am very, very
familiar with what we are talking about today and I am
certainly very concerned with the topic.
Back in Question Period,
the member opposite asked a question of the Minister of
Health and Community Services and he said this - but I
can reiterate it - that in fact we have had a tremendous
dialogue, the minister and I, not only since this motion
came forward but even in advance of that, about where we
need to go as a government to respond to the needs of,
first of all and most importantly, the needs of the
children in the system; secondly, the needs of the
parents and the families who are affected by this and
who struggle on a daily basis, I am sure, as I see my
own struggle; and the needs of the teachers who are also
struggling to do their best to help children, in many
cases when they just do not understand what the problem
is, is perhaps a very simplistic way to put it, a lack
of understanding of the disorder and what it is all
about.
We do work in the system.
I recognize the member opposite and her comments around
ABA. I am familiar with ABA. I am sure my colleague will
speak to it a little later on, the Minister of Health
and Community Services. I am familiar with the fact that
ABA is a program that many people feel is working and is
successful. I also need to acknowledge, Mr. Speaker,
that it is only one of many programs. I think my
relative shared with me that Son-Rise might be another
program that is used by some. So I am not acknowledging
that ABA is the best program but I do acknowledge that,
based on the consultations and discussions that I have
had with my colleague here in the House, as well as with
professionals in both departments of Health and
Community Services and Education, that it is a program
that many people feel works for children.
Also, Mr. Speaker, I
acknowledge the challenges that parents tend to feel
when children enter, not so much kindergarten, because
there is a phase out process when you enter the
kindergarten grade, but when you move beyond
kindergarten and into Grade 1 and the full-fledged K-12
system where you are attending school full time on a
daily basis. I also acknowledge that people find it
extremely challenging that the kinds of supports that we
offer there are not always where people would like them
to be. There are often struggles trying to move from
almost a culture shock where you are used to ABA on such
an intensive basis until the child goes to school and
then while somewhat reduced in kindergarten, you still
do have the presence of this support. Then when you come
into Grade 1, the kind of services and supports that are
provided are different.
Many of the supports, Mr.
Speaker, that we try to provide currently around
occupational therapy, speech language pathology and
professional development for teachers, those are
certainly important supports. I say that upfront. I
think families, certainly the families that I have
dialogued with at least, would acknowledge that when
they get those supports they are important and they are,
in fact, valuable to the child. When the teachers get
the proper training there is great value in what the
teacher can do in a school with a child in the
classroom.
Mr. Speaker, I want to
say a couple of things, and I am mindful of my time. I
just want to make sure people of the House are aware
that when we talk about the kinds of things government
has been doing, I want to remind people that through our
involvement in the Council of Atlantic Ministers of
Education and Training (CAMET), there has been a process
introduced, a review of autistic services, the supports
to education for autistic children and families, the
supports that are delivered across Atlantic Canada. The
intent is to try and seek out, for lack of a better
word, common ground on where each of the provinces
individually doing good things. From that, formulate
collectively a plan that will help us bridge a gap. The
gap that I think people readily admit, people here in
the House readily admit that exists from moving from ABA
and into the K-12 system. We are certainly very pleased
to be a part of that and to support that consultation
process.
Also, Mr. Speaker, I am
certainly very pleased to make a comment on our own
initiative here in the Province. We do have an advisory
committee on student support services, but more specific
to that, we have had some discussions with the Autistic
Society of Newfoundland and Labrador. As a government
and a department, our intention is to launch a
consultation process in the very near future. The terms
of reference have been developed for the committee and
the advisory group and the kinds of work that it will
engage in. It was our plan, well in advance of today,
Mr. Speaker, to launch that consultation process and
talk to people throughout the Province about where it is
we can bridge the gap.
Mr. Speaker, I am going
to jump right in, mindful of my time. I am going to make
an amendment to this motion, and here is why I am going
to make the amendment. As the motion currently reads,
word for word, it would say to this House that if you
adopt the motion that you take ABA and you apply it to
the K-12 system. Now, Mr. Speaker, there are a number of
reasons why that cannot be done, and I am not even going
to try to stand here in front of the cameras or the
people here, or the people out there and say that I have
a scientific explanation for that.
What I can say to you,
Mr. Speaker, is that I have been told clearly by parents
and by members of the Autistic Society that ABA is not
the answer for every child in this Province. Autism
comes on a spectrum where you have very, very high
functioning children who may have simple things, like an
inability to get along socially with people and then you
have the other end of the spectrum where the child has
significant difficulty in all aspects of life, including
academics.
Mr. Speaker, I believe
that the appropriate process for us to follow is to
follow our consultation process to engage people in the
Province and people up here immediately, and I think
those people need to tell us where they feel we can go
in the K-12 system and what kinds of services we can
improve upon. For example, I mention these because they
have been mentioned to me, not because I have the
answers, but occupational therapy and speech language
services are two that we deliver. The other piece that
we are responsible for is the professional development
of teachers, and I think one of my colleagues mentioned
it earlier in Question Period.
Now, I am not saying
those are the answers. Let me very clear here. I do not
know if those are the answers but what I have heard from
many people is that when they get those services, those
services are extremely valuable to the children and the
families. The complaint, for lack of a better word, is
that there are not enough of those services out there. I
believe if we adopt this motion, Mr. Speaker, we are
locking ourselves into one program that may not
necessarily be for the benefit of the majority of
autistic children. I believe that it might be an answer
for some and it may be able to be brought in as part of
a solution to go forward but I believe that there are
many other alternatives that parents are going to say to
us, we need to invest our money and our time and our
resources in to better improve what we are doing for
autistic children in the Province.
Having said that, Mr.
Speaker, I would like to read an amendment, and I would
ask the member if I could have leave in the event I go
over time a little bit, with permission?
Mr. Speaker, I would
amend the motion that is currently before the House,
first of all: (a) by striking out, in the second recital
clause, the words "the most common neurological
disorder" and substituting therefore the words
"one of the most common neurological
disorders."
My second point, Mr.
Speaker: (b) by striking out the sixth recital clause
altogether; (c) by striking out the seventh recital
clause and substituting therefore the words
"WHEREAS schools require appropriate resources to
meet the needs of students with autism"; and (d) by
striking out the resolution clause and substituting
therefore the following: "THEREFORE BE IT RESOLVED
that this House calls on government to work with the
Autism Society of Newfoundland and Labrador, the
Regional Health Authorities, School Boards and with
individuals and families touched by autism to enhance
the quality of life of persons with autism through
progressive improvements to programs and services."
Mr. Speaker, my final
comment, with a moment of leave, is that I believe if
this amendment is adopted the House gives us the
direction, gives me the direction as a minister to
immediately engage in this consultation process with
professionals and with parents to seek their input on
what we can do to improve what we currently have and
make it better for families and for children,
recognizing, Mr. Speaker, that part of what may come out
of that is that we need to extend ABA and the principles
of ABA in the K-12 system but it allows us to talk about
other things without carte blanche adopting ABA as the
one and only solution to the problem.
Thank you.
SOME HON. MEMBERS: Hear,
hear!
MR. SPEAKER: Order,
please!
The House will take a
brief recess so that the Chair can consult with the
Table and make a determination on the amendment as to
whether or not it is in order.
Recess
MR. SPEAKER: Order,
please!
The Chair has reviewed
the amendment that is put forward by the hon. Minister
of Education and deems the amendment to be in order.
The hon. the Member for
Port de Grave.
MR. BUTLER: Thank
you very much, Mr. Speaker.
It is pleasure to be able
to stand today and make a few comments with regard to
the Private Member’s Motion which was put forward by
the Member for Cartwright-L’Anse au Clair.
I am not going to read
all the Whereases, but there are just a couple I do want
to touch on. It says, "WHEREAS the number of people
receiving a diagnosis of autism is on the increase in
Newfoundland and Labrador; AND WHEREAS evidence based
research shows that the lifetime costs of assisting a
person with autism can be reduced if the child receives
early diagnosis, effective treatment and adequate
supports."
I understand, Mr.
Speaker, there was an amendment put forward which I have
not had a chance to read yet, so I will just proceed
with the comments that I have with regards to this
particular Private Member’s Motion.
I know that the minister
made some statements with regard to how families feel
throughout the Province, and before I finish that is
where I am going to, I guess, make my comments, with
regard to families that I know in my particular area of
the Province and in general.
We all know, Mr. Speaker,
that autism is a social and behavioural neurological
disorder that affects overall human development. I
guess, the first time that it was defined was some sixty
years ago by Leo Kanner, and it has only been in the
last decade that public interest in this developmental
disorder has so drastically increased. I am sure each
and every one of us can stand in this hon. House and
relate to different issues with regard to this disorder.
It is also staggering to
know what the rates of diagnosis of autism in Canada and
Newfoundland are, as we speak. In 2006, we had about
seventy-four children diagnosed. Those numbers jumped to
114 in 2007. Mr. Speaker, currently we know that the
numbers for 2007 were one in one hundred and thirty-two,
and the majority of these cases were with boys. We are
still waiting for the numbers for 2008 to be released,
but we are told that they will be even higher than what
they were in 2007.
Mr. Speaker, I have been
informed that the area where I live, Conception Bay
North - I understand that Trinity and the Conception Bay
North area is one of the highest areas of our Province
where autism is taking place today.
We hear from Dr. Bridget
Fernandez at the Janeway that there is a genetic
component to the disorder as there are some twenty genes
identified in children with autism, but she also admits
there is an environmental factor that is unknown. When
you know that there are certain areas where the
percentage of individuals, young people, diagnosed with
autism - and we do not know because, like she said, the
factor is unknown. There could be environmental issues.
I guess it says something, because, as a government and
as individuals in this Province, that is something we
should put our attention to, to see what is actually
happening in some areas. It could be an industry, that
is something we do not know, or whatever factors could
be playing a role there.
Mr. Speaker, when the
hon. the Member for Cartwright-L’Anse au Clair made
her comments, she mentioned about the seventeen-month
time delay from the time the parents are referred to a
psychologist to the time a child is diagnosed. We all
know, from time to time in our Province there are
various issues when it comes to our health care system,
but those seventeen months, or pretty close to two
years, are very crucial to those young people because we
know that from a very early age much can be done to
assist them.
We know that services are
available here in our Province today. At the present
time, children diagnosed with autism, up to the age of
six, receive the following services: applied behavioural
analysis; speech pathology services; and occupational
therapy. When it comes to this, Mr. Speaker, an
intensive social learning and behavioural modification
therapy takes place; therapy to assist in the
development of communication skills, whether speech or
picture recognition, and then we have the occupational
therapy, help with whether it is tying your shoelaces,
doing up buttons, holding a pencil, throwing a ball, all
various occupations of children.
However, at the present
time, once a child turns the age of seven all these
services are cut off, and that is really what this
private member’s motion is all about. We have heard
today of incidents, we have received letters from
various individuals, knowing that once those services
are cut off what the cost will be to a parent. We know
that it is approximately $12,000 a year they will have
to provide.
Mr. Speaker, some of the
concerns have been expressed by various families: one
individual, a parent of a seven-year-old with autism, is
hoping that something will be done at this present time
to put more funding into extending the services beyond
the age of six. They say for sure that they know what
families are going through. The minister mentioned in
his own particular family, the difficulties families and
parents go through.
Another individual wrote
that: We were told by the school – and I have to say,
knowing this first-hand, issues that happen at the
school level are supported by the school board, but in
this particular case that was exactly what was being
said. When the issue was brought forward at the school
level they were supported by the school board, however,
they were advised that the Department of Education is
not accepting any new applications for support services
within this program. As a matter of fact, they thought
that some of the services, as they knew them at that
particular time, would be taken away.
Mr. Speaker, other people
go on to say, that we need funding for this early
intervention, for the general population. In turn it
will save government huge dollars and rescue a number of
children from this epidemic. Mr. Speaker, the list goes
on and on. Another individual wrote what it will cost
them.
Mr. Speaker, with regard
to my last few comments with regard to this very serious
issue, I know in my area I had an incident, maybe three
years ago, where it came to the point that the family
knew that once their child became age six or over age
six the services that could be provided to them in that
particular area were definitely going to be downgraded
and the funding would not be there. That family moved
here to St. John’s to live even though there was no
funding for them after he passed age six. They felt that
they were in an area where more services and more
opportunity could be provided to that family.
I had another individual
who, when they applied for funding, when the services
were – not that the services were cut off, but what
was being paid for up to the age of six. They did an
assessment to see if government would be able to provide
any financial support to them to help with this service
provided to their child. When the financial assistance
was carried out, when the paper work was done, they
replied back to them that: We understand. They were not
wealthy people but they had an RRSP that they were
trying to build, not only for the child but for
themselves in the future. They were told that you have
to use every penny that you have in your RRSP to provide
continued service to your child after the age of six.
There was another case
back a few years ago, Mr. Speaker, when they entered
school and the family went through a tremendous time
knowing that there were some services there but really
the services were not available - what were expected and
what were needed - to help that particular child when
they went into the school situation.
Some of the people are
saying that they believe - and I understand where the
minister is coming from. He referenced one particular
area of this problem, and that maybe there should be an
overall review. No doubt, I guess the association and
others will be very pleased to hear that, as long as it
is not a review that will be put together and then
tabled and just forgotten about in the future.
Mr. Speaker, this is a
very serious situation and I hope that government, in
their wisdom, will be able to look at the main motion. I
know there is an amendment there, and that will be dealt
with shortly, but really the people are asking for
support for their children even beyond the age of six.
Some of them are asking, and they feel that this should
continue on at least to the high school level because
they do need the supports.
The families, I believe,
are crying out for help. Hopefully, through this private
member’s motion today, whether the main motion is
accepted in its entirety or along with the amendment, at
least I believe that something will be done to help
those families to carry on with their lives and to do
whatever is best for those young children who are
involved with this disorder.
Thank you, Mr. Speaker.
SOME HON. MEMBERS: Hear,
hear!
MR. SPEAKER: The
hon. the Minister of Health and Community Services.
SOME HON. MEMBERS: Hear,
hear!
MR. WISEMAN: Thank
you, Mr. Speaker.
I want to make a couple
of comments around the resolution itself, and then I
will make some comments with respect to the amendment
proposed by my colleague.
I think one of the things
we want to make sure is that people fully understand and
appreciate, the comments made by the Member for Port de
Grave, for example, a few moments ago, talking about the
incidents and the diagnoses that have occurred in the
last number of years, and the increase in incidents, let
me just reinforce that view.
I am looking at some data
here that suggests that back in 2002 there were
twenty-five newly diagnosed cases during that particular
year, and that has continued to increase progressively
over the period of time from that point in time up to
this year. We have had years where there have been
forty-two and seventy people, seventy-six people. The
year before last there were a little over a hundred
people diagnosed. Last year there were some forty-four
people.
So, Mr. Speaker, there is
no question at all, and the statistics that have been
cited and speaking to the resolution are very clear.
There has been an increased incidence and the diagnosis
is on the increase, and I suspect there are a number of
reasons that might be. One of which, obviously, is that
we are becoming much better at early identification.
Obviously, the earlier you are able to identify a
disorder, and the earlier you would be able to provide
intervention, the greater the chances of success, and
support being brought to bear early makes a major
difference in the lives of those individuals who are
impacted.
Mr. Speaker, I want to
make sure that there is a clear understanding, with
respect to our recognition as a government of the need
to support children with autism, that is without
question. The issue of recognition that we need to
examine the kinds of supports and programs that we
provide to children of autism, and the supports that we
provide to the families are critical – critical
response and the critical responsibility that the
government has.
I think, through my
colleague and the amendment being proposed, it is not at
all to take away from the thrust of the comments with
respect to the significance and the impact that autism
has on individuals and their families.
I think one of the things
that become really important, Mr. Speaker - and we have
learned this is a variety of areas - as the motion would
suggest, it is a very prescriptive motion and it may or
may not be an appropriate response for everybody who is
living with autism, or an appropriate response for their
families.
So I want to speak, if I
could, to the proposed amendment to the resolution, and
I think it is an important point. Let me just take a
moment to read it. It says, "THEREFORE BE IT
RESOLVED that this House calls on government to work
with…" - to work with is the operative word –
"…the Autism Society of Newfoundland and
Labrador, the Regional Health Authorities, School Boards
and with individuals and families touched by autism to
enhance the quality of life of persons with autism
through progressive improvements to programs and
services."
We have found, many times
throughout government - and let’s use by way of
example. As the Minister of Health and Community
Services, I am also the minister responsible for aging
and seniors. A couple of years ago I had the privilege
of leading a Province-wide public consultation where we
travelled to some seventeen communities and spoke to
over 1,000 people around aging issues in the Province.
It was a very valuable exercise because we heard from
organizations who were involved in supporting seniors.
We heard from individuals themselves who are supporting
family members who are seniors. We heard from seniors
themselves, and we heard from community leaders, so we
had a fairly broad cross-section of people come to our
consultations and I think we were enriched by that
process, Mr. Speaker.
We were enriched because
we had a broader understanding of the issues facing an
aging population in Newfoundland and Labrador. As a
result of that broad consultation, as a result of that
significant input from a variety of people, we were able
to put together a Healthy Aging Framework, and launch it
in 2007, that has guided us in the investments and
initiatives of government over the last two years.
I think, Mr. Speaker,
there will always be times when people will want to make
further enhancements, further improvements, or there
might be criticisms of not doing enough or doing it too
slow, but I think what is really important, though, is
that you engage the community, you engage the people who
are affected by it, you engage the people who better
understand the issue sometimes than most of us who sit
in this Assembly here.
That is why I think this
proposed amendment to this motion is a critical piece to
help guide us to ensure that we have a successful
outcome. There is no mistake here, Mr. Speaker; all of
us, every single person who sits in this Assembly today,
and the people of Newfoundland and Labrador, all
understand the need to continuously try and improve the
services that we provide. In this particular case we are
talking about people who are living with autism, talking
about their families and the support that they need. No
one at all, Mr. Speaker, would ever suggest that as a
government, as a society, we should not be responsive to
the changing needs of our society, the changing needs of
individuals, in this case with autism, but we need to do
it right, Mr. Speaker. We need to be certain that what
we are doing, we are making informed decisions, and we
are involving those people who are actively engaged.
Several years back, as a
provincial government, there was about $40,000 a year
being provided to the Autism Society. As a result of
some discussions with the society, talking about
programming that they provide and the supports that they
need, we are providing a $325,000-a-year grant to the
society so they can continue to do that work that they
do on behalf of the people with autism in this Province
and their families.
Mr. Speaker, let there be
no doubt, let there be no doubt at all, that as a
government we are keenly interested in building on the
services we now have. We recognize, and the member
opposite pointed out, the wait times for assessments. We
recognize that today, for example, we have had some
staff turnover, and as a result of that staff turnover
there have been some delays in the recent past. When we
get the staff who we just recently recruited gone
through some training programs they will be back on
track with the full complement that we enjoyed several
months ago.
There will be times in
the delivery of programs and services that you will have
interruptions, you will have some delays. That may
happen periodically because of some human resource
challenges, but, Mr. Speaker, always it is our intention
as a government, it has always been our intention as a
government, and that is what will guide us in the
future. Our interest is what is in the best interest of
the people of Newfoundland and Labrador and we respond
to the changing needs of various sectors of our society,
various sectors of our communities but when we respond
we want to make sure that we are making the right
decision, it is evidence-based decision making. What
this proposed amendment - and I say to the members of
the House that I will be supporting the proposed
amendment because I believe it reflects a process that
is appropriate for us to guide us as we move forward. To
stand in this House today, or to sit in this House as a
group of individual members and to support a resolution
that is very prescriptive and may or may not do what the
intention of the mover would have been.
I think in all
seriousness and in all fairness to the member opposite
who moved the motion, it was her intent and it was her
party’s intent, I am certain, to ensure that she in
fact at the end of the day, the result of a motion such
as this would see some improvements in the services
being provided to children with autism and supports to
their families. The intention, I am certain, was to
ensure that what we did as a government was the right
thing but I think, Mr. Speaker, what we want to try to
do is to better understand - there are many theories,
many views, many thoughts. There is one consistent view,
though, Mr. Speaker, and that is that there is a need to
improve services, and I will not argue that point.
The point being raised in
this House today for us to debate and the substance of
the motion and the thrust of the motion is to take a
particular type of action. So by proposing an amendment,
it is not to take away at all from the thrust of the
motion, not to take away at all from the intent by the
mover, not to take away at all from any of the comments
that have been made about the incidence of autism, the
significance of it, the impact it has on individuals and
families, the challenges these people find as they walk
through various stages of their lives, but I say, Mr.
Speaker, it is important to do what is right. I believe
that the motion as proposed here talks about a
consultation process. It talks about engaging people who
understand, it talks about engaging families, it talks
about engaging communities, the Society for Autism for
Newfoundland and Labrador.
So, Mr. Speaker, with
that I will conclude my comments, but I do want to
reiterate. As a government, we have made a commitment to
improving the quality of life for the people who live in
Newfoundland and Labrador. That is an inclusive
statement to talk about all members of society, and we
will continue to build on the programs and services that
we provide through Health and Community Services and in
this case here, Mr. Speaker, in partnership with our
colleagues in Education.
Across government there
are many initiatives that we undertake that crosses many
department boundaries. In this particular case here I
look forward to working very closely with my colleagues
in Education as we engage in this consultation process.
The lead on the consultation will be the Department of
Education. However, officials from my department and
myself will be actively involved in the process as well
because there is a crossover here between both
departments, but also too, the school boards and the
regional health authorities will be actively engaged in
this process and the outcome, Mr. Speaker, will be
clear. We will all, all members of this House, together
with government itself, will have a good understanding
and a better feeling today, and a better understanding
after it is over than we do have today about what might
be an appropriate action. When we come back to that,
some of the suggestions that are made in the initial
motion may be implemented, but we will not know that
until that consultation is concluded.
I say, Mr. Speaker, on
that note, I conclude my comments and thank you for the
opportunity to make my brief remarks.
SOME HON. MEMBERS: Hear,
hear!
MR. SPEAKER: The
hon. the Member for Signal Hill-Quidi Vidi.
MS MICHAEL: Thank
you very much, Mr. Speaker.
I am very pleased to have
the opportunity to speak to the motion that is before us
on Autism Spectrum Disorders, and the amendment that has
been suggested by the Minister of Education.
I have problems with the
amendment. I do not have problems with the intent of the
amendment. Obviously, I believe that this government
should work with the Autism Society of Newfoundland and
Labrador. They should already be working with them. I
presume that they are, but I do not think it is to a
satisfactory degree. Obviously, the House would call
upon the government to work with the regional health
authorities and the school boards. I am presuming, it
does not say it, but I would hope that it is the
Department of Education who is also going to be working
on this issue as well. The Department of Education is
not in the resolution, in the amendment.
Obviously, I believe in
consultation, and obviously I believe that especially
the Autism Society should be consulted by the different
authorities, whether it is the regional health
authorities or the school boards, or the Department of
Education, and that the individuals and the families who
live with autism, either because the individual has ASD
or the family that supports the individual. So they all
live with ASD in one form or another, in one meaning or
another. Everybody wants to improve the quality of life,
both for those individuals who are suffering from ASD
and also for the families who are living with the
individual.
So all of us want
everything that is in the amendment, but I think the
amendment, personally, waters down the intent or the
meaning of the original proposal. What does it mean to
say: Through progressive improvements to programs and
services? How long are we going to have to wait for
government to come up with what that means? We have been
over a year now waiting for some action on this issue.
Yet, today, what we have before us is an amendment that
promises that there will be consultations and that
through those consultations we hope to come to a point
where there will be an enhancement of the quality of
life of persons with autism through progressive
improvements to programs and services.
What I am concerned about
is that this resolution actually slows down the process.
I do not think that consultations, long drawn-out
consultations actually have to happen. I think the
Autism Society and individual parents and families have
spoken loud and clearly with regard to the needs.
Everybody recognizes the things that are there that are
positive, and I recognize them as well. What government
is providing with regard to an early intervention
program for young children with the diagnosis of ASD is
excellent, and the early intervention program is proving
to be very, very successful. It definitely,
significantly improves the outcomes for children with
ASD and their families; there is no doubt about that.
Under this program, and
maybe not everybody watching us today is aware of what
the early intervention program involves, but under this
program children who are diagnosed with ASD are offered
thirty hours a week of home therapy, which is supervised
by a senior therapist from Eastern Health. This therapy
has really proven itself to be successful. It is the
main medical intervention received for children with ASD.
What we have to keep in
mind with ASD is that while quality of life can be
enhanced, and while depending on what part of the
spectrum one may find oneself, one can have a quality of
life as one becomes an adult, improved from where one
was as a child, but the reality is, a person will always
have ASD. It does not go away. It is a lifelong
disorder. It is something that is a profound disability,
more profound for some than for others. It impacts the
life of the person, it impacts the family of the person,
it impacts parents, and it impacts siblings. Anybody who
has had experience in their family, either in their
immediate family or extended family, of somebody who has
been diagnosed with ASD and different disorders that
fall under autism, such as Asperger’s Syndrome, knows
the impact that that disorder has on the individual and
on the family.
The situation that we are
in right now is that children with ASD receive this
early intervention from the time of their diagnosis
until they enter Kindergarten. In Kindergarten the
therapy is reduced to fifteen hours a week, and at the
beginning of Grade 1 that intervention ceases. Children
and families who have been used to having this home
therapy, while it becomes more limited in Kindergarten
they are still used to having this home therapy. Once
they start in school the home therapy ends. Now, I do
not know what the thinking is around that. I can imagine
what the thinking is around it. It is that the school is
going to take over, the school situation is going to
take over from the home therapy, that the school
situation is going to have programs that will make up
for the home therapy.
One thing seems clear,
from those who studied ASD and those who have done
evaluation of early intervention and home therapy
programs, that about 50 per cent of the children benefit
from that to the degree that they could, in school, not
need the home therapy that has been provided up to now,
that their disorders are of such a nature that they
really benefit very well from the home therapy. There is
another 50 per cent of the children who get home therapy
who, in actual fact, still need extensive help when they
go on into Grade 2. They do not magically,
automatically, all of a sudden, not need what they
needed before. It is not that they reach a limit, they
can improve beyond, but they cannot do it on their own,
they need extra help, they need extra support.
What our program right
now does not recognize is that there are people, there
are families, who do get the extra help that is not
available from the system, that is not available from
schools and that is not available from the health care
system, but the families who do are the families who can
afford it. You get a disparity between families who can
afford to get the extra help once the child is no longer
eligible for the early intervention, because the child
is now into Grade 2, that once that happens, those who
cannot afford anything else, their child is not going to
have as much help as the child whose family can afford
it.
You know, I speak
personally from this. I do have a nephew who has
Asperger’s Syndrome, and he was fortunate enough to
live in British Columbia. The interventions that he
experienced in his schooling, all the way up to junior
high school, were amazing. By the time he got to junior
high school, he no longer needed the intense
interventions that were there for him all the way along.
He went through everything from the home therapy through
to having an aid with him all day long, in the
beginning, in the classroom with him, through to now
being ready to look at university; like another story
that was told here today. One, he was in a province that
offered help all the way through the school system, and,
two, he was in a family who could also afford to get
more help if more help was needed.
That is the kind of
disparity that we do not want to have. I do not think we
want to have it Province-wide, and I do not think we
want to have it family-wide, that any child who has ASD,
no matter where on the spectrum the child is, should be
able to get all the assistance they need.
Studies have shown that
an adult with autism who requires full-care group home
life, once they become an adult, that it costs the state
about $250,000 a year to keep that person in a group
home with full care, whereas, if money is put into the
system while children with ASD are in school, and we
come up front with the programs that are needed – and
I am not saying that every single one of the 50 per cent
of the children who did not benefit enough from early
intervention are going to need the same intensity for
the rest of their lives in the schools, but they are
going to extra help. If we put the money up front then,
we will be saving money down the road, because most
likely they will not require to be in a full care home
situation, costing the state $250,000. It is money
wisely spent for us to put money up front now while the
children are in the school system.
Another thing that is
happening - and I want to speak to this because I have
been speaking to families who have children with ASD -
three parents who I have been in touch with today, one
of those parents, and I want to speak for them because
they cannot be here in this room and speak for
themselves, so they are watching. They are watching all
of us. One of those parents has a seven-year-old child
with an above-average I.Q. who has not been in school at
all for most of this year. The school believed that
attending school was unsafe for the child, for other
children and for staff. This family has been under
intense stress because of that decision, because now
this family has the sole responsibility for this very
disabled child, twenty-four seven. They are the only
ones with responsibility for this child and that child
has two siblings, so you can imagine what this has meant
for that family. Right now, he is currently being
transitioned back into school. He is allowed to attend
school for forty-five minutes twice a week right now.
That child has a really special need and that family
should not have to handle that situation on their own.
I spoke to another parent
who told me about their eleven-year-old son, again a
child with an average I.Q., and that parent said her son
was expelled from school for three weeks and since then
has slowly begun a transition back to school. He is now
allowed to attend a little over three hours a day.
These are some of the
situations that are out there. These are the situations
that government is going to hear about, if government
has not already heard about them. I cannot believe that
I would be the only person who is being told these
stories. I am sure that my colleague, the Leader of the
Official Opposition, in bringing her motion forward
today, brought it forward because she, too, has these
stories coming to her. We get them from individuals, and
we get them from the Autism Society. They are out there.
I am positive that some of my colleagues on the
government side of the House have to be getting these
stories also.
I am sorry about the
amendment, because I think we would have assumed there
should be consultation anyway, whether or not that word
was put into an amendment. I hope this amendment does
not do in action what it does in words; because, for me,
it waters down. I appreciate the ruling of the Chair. I
do not think it changes the total intent of the motion
that was put forward. I am not going to speak to it, I
did not move it, I did not second it, but I was ready to
vote for the motion as it was put forward because I
believe that radical action is needed. I believe that
those families, two of whom I have just spoken about,
and there are more of them out there, they need help,
they need assistance. This is not just their
responsibility.
I do know, from speaking
to these families, that right now the treatments that
are out there that are in schools, like some of the
programs that the Minister of Education spoke about, the
occupational therapy programs are very limited. So I
hope that when the minister says that he wants
progressive improvements to programs and services, I
hope that means immediately, absolutely immediately, and
improvements - it is not improvements in the type of
programs. I do not think people are complaining about
the type of programs; it is that there are inadequate
resources to service all of the children who need them.
Right now, in my understanding, the latest figures we
got from the Department of Education, we have about 400
children in the Province, with 200 of them,
approximately, being in the Eastern Region.
Progressive improvements,
that means put money in there to take care of these
children, but something has to be done about the
parents, where their child has to move back and forth
from the school to home.
MR. SPEAKER: Order,
please!
I remind the hon. member
that her speaking time has expired.
MS MICHAEL: If
I could just clue up, please, Mr. Speaker?
MR. SPEAKER: Does
the hon. member have leave?
SOME HON. MEMBERS: By
leave.
MR. SPEAKER: The
hon. member, by leave.
MS MICHAEL: Thank
you.
We have to worry about
not just the child in the system. It is like, with what
we have done now, once a child gets into Grade 1 that is
it. We do not have to worry about the family any more;
we do not have to worry about their home situation any
more. What I am saying is that the home and the family,
right through, as long as this child is in school, has
to be part of the programming that happens.
As I said, I am sorry
about the amendment. I will be voting for the resolution
and I thank the Speaker.
MR. SPEAKER: The
hon. the Leader of the Opposition.
MS JONES: Thank
you, Mr. Speaker.
I certainly want to thank
all of my colleagues in the House of Assembly today for
their input into this particular issue, their insight,
and also for their co-operation. I specifically refer to
the amendment that was proposed by the Minister of
Education. While it is not the swift and quick action
that we were asking for in the motion that we tabled, we
are satisfied that government’s attention has been
drawn to the issue and that they are prepared to work
for better solutions.
Mr. Speaker, I just want
to point out that the whole reason in bringing this
motion to the floor of the House of Assembly today is
because it is an issue that has not been dealt with to
the satisfaction of families who have children who
suffer from autism in this Province. It is because of
the very stories that you just heard from my colleague,
the Leader of the NDP, and from others who have spoken
here today. In fact, I have several pages of stories
myself that were told to me by parents of autistic
children, about how they were treated in classrooms only
because the resources were not there to deal with their
illness, to deal with the kind of communication skills
that they were lacking.
Mr. Speaker, we do not
blame the teachers in the classroom but we do realize
and have to accept that we have a system that is not
working for all of these children, and we have a
responsibility to improve it.
Mr. Speaker, my
colleague, the Minister of Education, today proposed
that government would, "…work with the Autism
Society of Newfoundland and Labrador, the Regional
Health Authorities, School Boards and with individuals
and families touched by autism to enhance the quality of
life of persons with autism through progressive
improvements to programs and services."
I am taking that to mean
that the Department of Education would be one of the key
players involved with this entire process. Mr. Speaker,
we do not want to see this pushed over into another
study that will take another year or two years to be
reported upon. We already have a study right now that
was done in the name of the ISSP plan and the Pathways
plan, that was done, a very comprehensive piece of work
that outlined very specifically that students with
exceptionalities in our school system need to be
treated, and there are responsibilities on behalf of the
government and the Department of Education to ensure
that they have the resources in the classroom.
I can stand here for the
next fifteen minutes and quote from the recommendations
that were in this report about services that were
supposed to be improved in schools, and a lot of it has
not yet occurred. This report was done now since 2007
and it talked about the fact that student assistants
needed to become teacher assistants in the classrooms in
order to deal with children like those who suffer from
autism, but we do not have a program developed even
today in this Province to teach these people how to
become student assistants. We do not have any
certificate program like they do in other Atlantic
Provinces. We do not even make it a requirement in our
school system to have that resource for children.
The minister and the
government have had that recommendation for two years,
telling you that this needed to be done, so don’t
think that we are going to be bought off by another
report or another study and we are going to go away and
let this thing just fade. That is not on.
We will support the
amendment that is brought forward, and we will vote for
it, but we expect government to act in a timely fashion.
On June 3 last year, nearly one year ago, when I raised
this issue in the House of Assembly I was told at that
time that the government, through the Minister of
Education and the Minister of Health, would evaluate and
look at options to improve services for these children,
and it did not occur. It did not occur.
For example, Mr. Speaker,
one of the few recommendations in this report that did
get implemented partially was a recommendation around
classroom teachers, basically stating that teachers
should have to do certain courses, as part of their
Education degree, that would deal with autism. Of
course, Mr. Speaker, the report recommended that there
be two. Right now, from what I understand from Dr.
Philpott at Memorial, there is only one program that has
been introduced. The other one is actually optional and
they do not have to do this course; it is an optional
course. So, Mr. Speaker, even that recommendation that
was in the report did not get fully endorsed.
It also talks about
Special Education teachers, and the fact that Special
Education teachers need to have all the appropriate
training to deal with all aspects that students with
exceptionalities have within the system. In fact, we are
learning today that 40 per cent of our teachers that
actually work as Special Education teachers in our
schools do not hold a Special Education degree. Only 60
per cent of them do, so 40 per cent of them have never
received the appropriate training in the first place.
Those are things that I think government needs to start
looking at immediately.
Mr. Speaker, the other
issues are around things like occupational therapy,
which the minister did allude to when he spoke this
afternoon. Those things need to be provided for children
who are in the system. That is the whole reason why we
are bringing this forward today. It is not just to deal
with ABA, but it is to deal with all the other supports
that they need: the supports around speech and language,
and around communication skills. Because we all know,
and statistics show, the two books that I quoted here
today - that were written by the same author that the
government has been paying for years to work with these
children - are telling us that the program can work in
the schools. It just needs to be done. He has even
written a book on how it can be done, how it can be a
part of the education system. Where it may not work for
every single child of autism, it will work for a lot of
these children but if it is not available, how can they
avail of it?
Mr. Speaker, in this
Province today we have seen the number of children with
autism increase. In 2006, we had seventy-four children
that were diagnosed. These numbers today have jumped to
114 in 2007, and we expect that the statistics for 2008
are once again going to show a rise in those particular
numbers. In fact, Mr. Speaker, the demand for service is
climbing. It is climbing simply because there are more
people out there, more children out there that actually
need the service.
In fact, Mr. Speaker, I
was going to quote one of the doctors at the Janeway,
one of the doctors that have dealt with this particular
issue. I was looking for what she had to say because her
comments were very insightful, but what she was talking
about was that the numbers related to the number of
children with autism increasing in the Province is far
greater and far higher than any other similar cases that
they have been dealing with. I think that those kinds of
remarks coming from people that are specialists and
authorities in the field is reason enough for government
to think that they should act and the time has come to
act.
Mr. Speaker, I have
received so many e-mails from across this Province. In
fact, one e-mail that I received only recently really
disturbed me, because it was from a parent of a
ten-year-old son who had been diagnosed with autism
spectrum disorder, only in November of 2008. They had
developed an ISSP program for him in the school system,
but they were just told by his school that the
Department of Education is not accepting any new
applicants for support services and programming. I do
not know why that is. If this is supposed to be the
solution in dealing with children who face those kinds
of challenges in our system, why is there a parent being
told today that the service will not be available for
his child? Why are they not taking new applications?
Mr. Speaker, the parent
went on to tell me that the school has been trying their
best, pushing this with the board and the Department of
Education, and they have been informed that support
services will actually be reduced for this coming year.
I do not know why that is. Those are the kinds of things
that parents are being told in the system. This is the
response that they are being given. I am going to give
this to the minister because I think it needs to be
looked into. I think there needs to be answers provided
to these families when they are being told that the ISSP
process is the process for your child, that we are now
going to incorporate everybody into the one classroom
setting and that services are going to be provided but
yet they are being told that it is not available to you.
There needs to be a reason. One is not jiving with the
other at all.
In fact, Mr. Speaker, in
another e-mail I received from a lady on the west coast,
she told me that she has a two-year-old and a
four-year-old that suffer from autism. In fact, they
went on to tell me that they have three cousins, every
one of them who have children with autism. She went on
to say that in the classroom her children were educated
in on the west coast of Newfoundland, they have had an
autistic child in that classroom almost throughout every
single year of their schooling and they have not been
getting the supports.
These are not people who
deal, just flimsy dealing with the system. These are
individuals who are there every day, who are trying to
walk their children through our education system and
ensure that they get the best education possible so that
they can have the successes as we have heard today from
students who are graduating from Memorial with autism
and other post-secondary programs but the reality is,
not all children get that far.
In fact, Mr. Speaker, I
have dealt personally with a case this year of a child
who has basically been terminated from school, not
allowed back into the school because they do not know
how to deal with their behavioural issues, which stems
from the fact that they have not had the proper
treatments. They have not had the proper communications
in their lives in the system to be able to deal with
this. So they are abandoned from our system when they
are fourteen years old. Is that appropriate? I do not
think so. It is a real problem and may not be affecting
hundreds and thousands of children in our Province but
it is affecting dozens of children, tens, twenties,
thirties of our children. In fact today, Mr. Speaker,
over 100 of our children. That is an important enough
reason to make changes.
I received this e-mail
from a father of a boy with autism who, within the next
eight months, will no longer be eligible for services
through the government with respect to ABA and the other
essential programs that he was receiving. They estimate
that their cost this year, to ensure that their child
continues with these services, will be a minimum of
$12,000. How many families can afford that?
The family on the West
Coast of Newfoundland who has a two-year-old and a
four-year-old does not have the income today. Maybe they
will in two years time, afford to spend $25,000 a year
on services for their two children, but most of these
families cannot afford even the minimum, which is
$12,000 to get those treatments and to get that service.
Mr. Speaker, our purpose
today in bringing forward this motion was to ensure that
certain issues around this are addressed, that children
with autism have a place in our school system and they
have the supports that they need to be able to study and
be able to progress and to be able to be contributing,
functional members of society. We all know that once
they go without the program, once the government lets go
of the hand of that child at six years old, they regress
in most cases. That is why by the time they get into
further grades in their schools that they have these
behavioural problems and they are being expelled from
schools and playgrounds and other activities that are
going on.
Our purpose today in
bringing this motion forward is not to condemn the
government for what you are doing, but to ask you to do
more, to ask you to not let go of the hand of that child
when they reach six years old and enter the classrooms
of our schools, but to continue to take them through our
system so that they have the opportunities that all
other children in our society have. I certainly hope,
minister, that your commitment today, and I do not doubt
that it is sincere, but I hope your commitment today
will be one that we will see progressing in the early
days and not a year from now or two years from now. I
think we need action sooner than then. So we will be
watching to see how government progresses on this issue.
Thank you.
MR. SPEAKER (Fitzgerald):
Order, please!
Is the House ready for
the question?
Shall the amendment as
put forward by the Minister of Education carry?
All those in favour,
'aye'.
SOME HON. MEMBERS: Aye.
MR. SPEAKER: All
those against, 'nay'.
The amendment is carried.
On motion, amendment
carried.
MR. SPEAKER: Shall
the resolution, as amended, carry?
All those in favour,
'aye'.
SOME HON. MEMBERS: Aye.
MR. SPEAKER: All
those against, 'nay'.
The motion, as amended,
is carried.
On motion, resolution, as
amended, carried.
|